Awareness, Chronic Illness Blogs, Life With A Stoma, Personal Blogs

BBC Radio Brain waves

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After talking with the lovely Pennie from BBC Radio Scotland, we had a cuppa at my home and recorded some conversations on topics for the Brainwaves Podcast edition for Series 7 in 2020.

In Pennie’s Brainwaves series, she explores the science behind our everyday experiences and shares this with scientists who work in Scotland. The first series which started in 2014, covers topics such as Edinburgh Science Festival, Obesity Figures in Scotland. Series 2 covers topics such as how sounds affect people, meeting and talking with scientists and professors and meeting Karen Vousden, director of Cancer Research. Series 3 covers topics such as Biometrics, The Psychology of Cheating, Donating your body to science and The Flu virus. Series 4 covers topics such as The Northern Lights, Antimicrobial Resistance and the Anatomy of a stroke. Series 5 covers topics such as The problem with plastic, The Invisible Disease and Child Tissue Donation. Series 6 which covers various topics such as Food For Thought, Street Drugs and Pain.

Series 7 which is set to be released early 2020, is currently being recorded. Subjects include a shocking insight into the prevalence of perinatal PTSD, a real eye opener on what might be the next big environmental pollution issue plus a few good, bad and ugly facts about fat.

I am VERY excited for you all to hear our one which covers many subjects! When it is published, I will make sure to update you all!

 

 

Awareness, Chronic Illness Blogs, Mental Health Blogs, People's Stories!, Personal Blogs

The Mental Health Taboo With Pregnancy

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After watching Loose Women, a celeb dating star Anna Williamson talked about her mental health before pregnancy, during and after the birth of her first child. Anna was extremely brave in talking about something that society has a set perspective on when it comes to pregnancy and having a family which is that pregnancy should be the most exciting and amazing time of your life. But that isn’t how it is for many who suffer from mental health conditions.

In my blog IBD – Pregnancy/Termination I talked about my situation when I became pregnant after being told I would never be able to get pregnant and to help other women in the same situation I was in which was that I was told this information based on opinion and through no fertility testing. However I never talked about the emotional impact this had and STILL has on me. It’s hard, and that’s putting it lightly. Since then I have had another miscarry and I am desperate to be a mum. They say to look at that silver lining and for us, it’s that I know I can get pregnant now!

I spoke to women and men who also felt that mental health had a big role to play prior, during and after pregnancy;

 

Kellie

“It felt like I was going to fail as a mom. When I was pregnant over three years ago, four months before falling pregnant I had my stoma operation. My surgeon was very concerned which made me concerned and panic. There were regular what ifs and what if this baby didn’t make it  as I had had 5 miscarriages. At ten weeks, my whole life was on pause as they didn’t know if I would survive, they diagnosed me with a brain condition and I went blind for three months. I was in such a dark place I didn’t know if I was going to make it, I kept asking myself was my baby going to make it, or if we did pull through how would I cope being a mom with a new illness on top of the illnesses I already have!”

“Pregnancy was no walk in the park for me, and I couldn’t be alone. I was scared to be left alone so my partner would come to the hospital everyday and be with me from 7am that morning till 11pm at night. I had to stay on the phone to him all night just to try and stay as calm as possible. I was also on different types of medication as they didn’t know if the baby would come out addicted to the medications or not. I wasn’t on medication by choice, I was on medications to try and survive and for the baby to survive. I had open brain surgery at 20 weeks pregnant and I honestly thought when I was being put to sleep that it would be the last time I would see my family. I didn’t bond with my son for a few months and unfortunately, it took longer for me to bond with him as all I did was sleep and eat. My partner actually had him the majority of the time after major bowel surgery, being ill, open brain surgery and being a new first time mom. Delivering conor I was all over the place between hormones. I really didn’t know if I was coming or going. When I got better and when I was allowed to go home, I was close to my due date and I kept having panic attacks thinking something was going to happen to the baby or myself. I couldn’t sleep, I was restless, I was alone.”

Laura

“I’ve been on maximum dose antidepressants for depression and anxiety since the age of 14. When I became pregnant in 2010, I was seen at the hospital regarding my medication. They advised me to either come off my medication or to switch to one that would have less effects on the baby. My anxiety told me to stop my medication completely, I couldn’t bare the thought of any medication having a negative impact on this little person I was growing. The first few weeks weren’t too bad, I found myself either feeling on cloud 9 and the happiest person alive or I then felt myself pushing everyone away and isolating myself. I kept blaming it on pregnancy hormones and carried on as I was. My baby was born prematurely in April 2011 via emergency caesarean. Nothing prepared me for that, and especially for what was to follow. I blamed myself entirely. I blamed myself for my tiny baby being in high dependency. I felt like I had failed him, my body had failed him, and for weeks I bottled these feelings up and tried my hardest to embrace my new role as a mother.”

“When I finally brought my baby home, I made sure he was clean, fed, loved and my god did I love him. But there was always this overwhelming feeling inside that I wasn’t good enough. I truly believed that I didn’t deserve this baby and didn’t deserve to feel happy. I told myself I didn’t love him enough. I struggled in silence for 6 months before admitting that I needed help. I openly told my doctor “I can’t do this” and the GP put me back on to antidepressants. It has taken me so long to accept that I need these tablets to function and to stabilise my emotions. It has taken me so long to accept that I was and am worthy of this special boy. I am no longer ashamed of my mental health issues and I need to take these tablets to make life easier for me and keep those intrusive thoughts at bay then I do! I was also so in love with him but I remember those unwanted and intrusive thoughts creeping in, telling me I wasn’t good enough for this and that I didn’t deserve this beautiful baby boy.”

 

Danielle

“Before I fell pregnant, apart from the desperation and obsession with becoming pregnant, my mental health was quite good. I was always able to control it and get on top of it myself. Never felt I needed to seek much help and always dealt with life’s shit pretty well. But it’s like something changed in me when I became pregnant, I was petrified of losing my unborn baby! SO petrified that I was adamant it was going to happen.
I didn’t really enjoy pregnancy much until 20 weeks. I don’t know why but that 20 week scan made me feel like I could breathe a bit and my unborn baby boy was healthy and he was actually going to be OK. But that horrible anxious feeling never fully went away, I think that’s because I didn’t have a lot of trust in my body, seen as though it had thrown a chronic illness at me out of the blue. Despite all my concerns and issues, besides initial worries from labour, he was a healthy baby boy. I don’t know if my pregnancy anxiety is to blame for my mental health declining once I had him. He had Cmpa ( a food allergy caused by the baby’s immune system reacting to proteins in cow’s milk) from birth so we had our issues and battles which was never easy. He wasn’t diagnosed for weeks and I felt like I was losing an uphill battle with medical professionals. I struggled so much from early on because he screamed, a lot, and wasn’t a happy baby. I felt so stressed and angry All. The. Time, A time that I was meant to be enjoying my new baby boy it was awful some days.”

“Even though I wasn’t alone I felt very alone, very scared, both judged and a very bad mum! I was petrified to talk to anyone about how I really felt incase I was judged! I was so scared someone would take my baby off me and think he would be better off with someone else. I did go to the Drs a few times, trying to explain how I felt but I kept getting dismissed and I lost faith in them. Eventually, nearly 2 years after having him! 2 whole years, I felt like I was losing my mind and I wasn’t a very nice person to be around. I couldn’t control my anger or my emotions. I felt so lost and so far from myself it was unreal! I took my sister to the Drs with me who thankfully listened. I self referred from there advice to try CBT. I give it a good go, I tried a few appointments and stuck to it, but still felt myself sinking. My son was well over 2 now and he deserved so much more than what I was giving him! So I went against everything I once believed in, and asked for antidepressants. I was scared of those because I didn’t want to feel numb, I didn’t want to be emotionless towards my son or partner, but I NEEDED something and fast. So 11 months I have been on them now, and my God what a difference!! I’m quite saddened to think I lost myself for so long and got such an important chunk of my little boys life, and I know, which is also proven, that my mental health WOULD of had an effect on him because I left it too long. But I pray and I hope with everything in me, I have time to reverse any damage and soon enough, before the years out, I’ll be medication free and coping OK. Nobody tells you about this part of pregnancy and being a parent, not peppery. You never expect it to happen to you. But it can happen to anyone. And please don’t do what I did, don’t try cope and don’t ignore it. Ask for help, no-one is there to judge you, only to help you.”

Zoe

“My experiences with a newborn – I went into it expecting it to be the most amazing and wonderful experience in the whole world: especially after all the ivf and how longed for our baby was, I thought it would be magical. And don’t get me wrong, it was wonderful, but wow it was so hard too! The physical exhaustion of having a newborn affected me more than anything. I was breastfeeding for the first 2 and a half weeks, and he would feed constantly. And I mean constantly. There was no physical time left in the day for me to sleep. I was beyond exhausted. I was losing control of my mind, I felt like I was ghosting my body, like I wasn’t there. I felt like looking after my baby was a chore. I didn’t feel like I could enjoy even the cuddles. It wasn’t until I started bottle feeding, where Harry actually enjoyed being put down, I could actually sleep, and I got my sanity back. When he was breastfeeding, he would only settle on me, he would only sleep on me. It was relentless. I didn’t want to tell anyone, I felt like I was failing and I had to keep my front.”

Debbie

“I have recently had 3 miscarriages, and during my pregnancies with both my daughters in 2007 and 2008, I had strep B with severe sickness. Due to severe depression which I was diagnosed with in 2009, my two girls were taken away and have been adopted. I found it hard to manage simple things like cooking, couldn’t eat without being sick so ended up being anemic for a while, I couldn’t get much sleep as I was always lay awake worrying. Due to this awful experiences, I have ended up not trusting professionals and I still don’t. I was always worrying something bad was going happen and this has affected my mental health long term.”

(this gentleman is being kept anonymous) 

“I find men don’t know what to expect during pregnancy, and I personally found that when going into the hospital with my partner, I was ignored by the staff. They don’t tell you what to expect or how it’s going to be. When we had my youngest, my partner was on gas and air and I sat there doing nothing until she went into labour, nobody talked to me or said what to do or helped me cope with it all. I think because we aren’t the patient, we are left to it which I think is unfair as it’s an experience to go through together as a couple.”

Amy

I have never been very maternal, yes I wanted children, I wanted one each a boy and girl, but for me I had to be a lot older, successful and married. Obviously fate had a different idea. I fell pregnant 3 months after dating my boyfriend, it was mid Jan 2015 when I found out. I had just landed a full time permanent job and this really put a spanner in the works. It was a shock, this wasn’t planned and I didn’t know my boyfriend that well enough either. Even though my pregnancy was a shock, I knew then and there I was sticking with this pregnancy. My boyfriend however wasn’t so keen on the idea. I broke the news to my parents and apart from an initial shock the next day they both supported me with whatever I decided. My boyfriend took a whole week to tell his parents and they weren’t thrilled either. Back then I think I should of left him as the warning signs were all there.

My pregnancy wasn’t easy at the slightest, I’m 4ft9, I was about 5 and a half stone then, so growing a baby left me in a lot of pain. I was sick constantly and was back and forth in A&E as I was so dehydrated and had constant drips to help with that. I had sickness throughout until I actually went into labour. My boyfriend came to terms with things but wasn’t at all in the slightest encouraging. He came to most of the scans, as did my family but he wasn’t overwhelmed with emotion like we were. Anyway we got prepared and minus the sickness and needing constant growth scans, (as for a while baby was growing quite small) things were fine and dandy. My due date was 4th October 2015. I got told I wouldn’t be on time and would be late, however on the 14th September, I was getting a lot of pain and started bleeding. On the 15th pain was worse and my mum decided to time them and low and behold I was actually starting labour. The labour ward got me in when my contractions were about a minute apart and after a quick sweep and realising I was already 4cm dilated, I had a birth pool running and we were in hospital. 16th September 2015 at 7:56am my daughter was born at a beautiful 6lb4oz. Apart from being a bit blue and mucusy she was fine and after 24 hours we went home. This was when things went bad. My partner moved in with me in my parents house, but they just couldn’t get on. He hardly helped with our daughter and at this point I became quite poorly myself as was having a lot of stomach pain. It got so bad at one point I had to get an ambulance round. No-one could work out what was wrong so was put on some painkillers. Day 5 of my daughter’s life and after a few days of her being jaundice my midwife and health visitor told me to get her to hospital and myself as well as I was running a fever and not being well. So we did. We both got admitted in.

My daughter was poked and prodded with numerous tests and she was rushed straight to NICU as her bilirubin levels were dangerously high. We were told if they continue to rise that she may have brain or organ failure. We were told to expect the worst if things didn’t improve in 24 hours. She was put in all uv lighting. She had tubes going everywhere and the tiniest cannula ever. This was when my mental health went bad. My heart was breaking in so many ways. How can this happen? I’ve only had her in my life for 5 days, you can’t take her away from me now. Will she live? Will she have permanent problems? How am I going to cope? Why the hell has this gotten so bad? I was distraught and worse I was admitted in and until they can figure out what was wrong with me, I wasn’t allowed to be in nicu. I was breastfeeding so I needed to be there so I could do that. They allowed me for that reason but after 2 days my bloods came back saying I had an infection and while that was going on I no longer could be there. So I expressed. But I wasn’t making much sense, which then made me cry my eyes out as I couldn’t even do one simple thing for my daughter. The hospital was amazing. They made sure I was being checked on and keeping me updated constantly about my daughter. I had the mental health team round as my scoring was very bad so they sent the support, but I refused, I just wanted to be with my daughter. Her father hardly went to see her, he was more interested in playing his game or sleep. At one point he saw her for about 10 minutes and then went off with his family to get a pizza, not once asking if I needed anything.

My parents, especially my mum, were there being my support group that they always are, they made sure I was coping and being there with my girl while I couldn’t. They gave me things so I had her smell and she had mine. Regardless though, I still felt alone, so lonely, so lost, so hopeless, so frustrated and so very angry. I just want my baby home and well. Somehow a miracle did happen and after 2 and a half weeks we were home. We had another month of tests to make sure nothing creeped back but she was safe. But even being home my low mood didn’t budge. I instead worried every time she was asleep.

It is incredibly brave for these people to share their stories over the past few months and to share via this blog post. The main aim in sharing these stories is for those who are in similar situations with mental health whilst being a parent’s or parent’s to be to not feel so alone. It’s OK not to be OK at any time in your life! Just make sure to reach out and get the help and support that you need, whether that be in a friend, family member or medical professional.

Life With A Stoma, recipes

Cauliflower Cheese Soup

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This week was started of by making Cauliflower cheese soup!

I absolutely love cauliflower cheese but I digest Cauliflower much better when it is in a soup, blended. I know many people with a stoma or Inflammatory Bowel Disease have the same issue so I thought this was a nice recipe to share. Many dietitians recommend a high fibre diet so if you are on a high fibre diet this could benefit you!

This is a lovely comfort food soup if you aren’t enjoying a high fibre diet or have limited foods within that diet that you can eat. It is creamy, cheesy and full of flavour!

For this recipe, you need:

  • 2 peeled potatoes
  • half tub of double cream
  • 2 bags of mature cheddar
  • 700ml (or to your taste) of vegetable stock
  • salt and pepper
  • 2 cauliflowers
  • 1 finely chopped onion
  • butter for cooking the onion
  • 400ml milk

Firstly, cook the onions in butter then add chopped cauliflower, potato, milk and vegetable stock.

Simmer for 30 minutes (or until really soft) then add in cheese, cream and seasoning.

Boil at heat mark 4 for one hour and then blend to how you like!

And that’s it! Simple and prep/cook time is super quick.

 

 

 

Life With A Stoma, Personal Blogs, recipes

Stoma Friendly Bread and Butter Pudding

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Having a stoma can be difficult when you can no longer eat the foods that you once loved, if that means either you are unsure about eating them or simply you have found you cannot eat it from your trial and errors food list. Bread and butter pudding is my most favourite dish and has been since I was little as my mum used to make me it on a cold winter day.

I found a new way to still enjoy this dish without having to eat sultanas as they make my stoma terribly sore and give me a blockage. Sultanas are what gives this dish the most flavour complimenting the cinnamon and nutmeg, here’s how:

For this recipe, you need;

  • 1 tub of double cream
  • 25g of caster sugar
  • milk
  • 2 eggs
  • sultanas
  • bread
  • butter
  • nutmeg
  • cinnamon
  • one oven dish

After cutting the bread in half, making triangle shapes, butter just the top and put into the dish. Sprinkle with cinnamon and nutmeg and repeat this process until you are happy with the depth of bread.

When combining the cream, milk, sugar, cinnamon and nutmeg, put in the sultanas and warm on the heat setting 4 for 15 minutes then bring to boil on heat setting 6 for 5-10 minutes. This part sounds a little messy however it isn’t so messy! Take a potato masher and squeeze down the sultanas until they are a mushy consistency.

Mix the two eggs with sugar together and whisk until they are a pale colour. Take a sieve and pour the contents of the pan with your sultanas into the sieve over the egg and sugar mix and squash out all the juices with a spoon until no more comes out, then dispose of the sultanas.

Mix these together and pour over your bread triangles in the oven proof dish and leave to sit for 30 minutes. After 30 minutes put into the oven at 180 degrees for another 30 minutes.

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Add some cream or ice cream and enjoy!

Personal Blogs

The Enchanted Forest Cosmos

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Last year we went to The Enchanted Forest event to celebrate our first year anniversary of being together. This year we wanted to do the same and make it a yearly thing! This years theme was Cosmos with lots of outer space sounds and visuals.

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This event is held in Pitlochry, a scottish town near Perth. As we are in the North East of Scotland it takes is around 3 hours to get there depending if traffic is OK so this year we left early to get there during the afternoon and explore the town as last year we didn’t have time. We had a little walk around the town and went to a little candy store that had lots! We also had to make a stop into the hardware store as silly me forgot the memory card for my camera! Once we got that sorted we headed back to the hotel where the coaches picked up people for the event, had our complimentary tickets scanned and our hands stamped.

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Once we got onto the coach, they had a recording with cute music playing alongside a voice over, to let everyone know the rules such as not to litter and explaining to children to be careful etc. It took around 5-10 minutes to get to the forest where the event is held and we stepped off and headed towards the beautiful coloured lights. The weather wasn’t exactly on our side but the trees sheltered out most of the rain! Firstly, we went for a bite to eat at the burger stall. Jaimie had a cheese burger meal and I had a hot dog with chips and cheese (my favourite!) The chips were just as amazing as last year but sadly we were both quite disappointed with the hot dog as when tasted, it was just two normal sausages with herbs in them which didn’t taste too nice, I didn’t care too much as the chips were so so good!

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We walked around the lake and viewed all the beautiful displays such as the water light show and these beams that lit up and played music when we touched them! We then got some hot chocolate (just me as Jaimie doesn’t like chocolate) and headed back to the coach. By this time it was really, really cold so we headed back to the car after getting off and put the heated seats and warm air conditioning on!

 

Down below are some photos from the event ;

 

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Personal Blogs

Halloween Tag 2019

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It is Blogtober and that means many wonderful blogs! After being tagged by the lovely @thespooniemummy who has an awesome blog raising awareness on all things chronic illness and parenting.

I thought I would join in on the Halloween Tag 2019, here are the questions!

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1.What’s your favourite non scary Halloween Film?

Casper!! I have loved Casper since I was a little girl and how they intertwine the physic side of life into an epic kids halloween film.

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2. And your scary film to watch is?

I absolutely love scary/horror films.. but of course I can only pick one! So it has to be The Nun. It is simply terrifying and even though it is the last of the Insidious Saga of films, it is actually the first one. It was released after the last Insidious film. I won’t ruin it for you if you are yet to watch it.. if you like a good scare! What I will say is it will definitely leave you sleeping with the light on or destroying a whole multipack of crisps or tub of ice cream without realising!

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3. Do you have any Halloween traditions?

We always have a night in watching scary films or gaming, however last year we had a little switch up and bought the dogs Halloween costumes! When the trick or treaters knocked on the door, we greet them with dressed up doggies and the kids totally love the animals joining in! This year however one of my friends who owns his own bar locally is having a Halloween party on November the 1st so we will be dressing up and attending that, I’m also doing the photography for that so it will be really fun!

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4. What is your favourite season of American Horror Story?

That is such a tough decision to make as each season is bloody amazing! I’m 50/50 with The Asylum and The Hotel! I love the Asylum because it highlights such important factors within the mental healthcare system back in that time and also how in those days mixed racial relationships had to be kept hidden and if anyone knew, these couple received such awful back lash not only from the community but also their own families. The nazi doctor who did experiments at the mental asylum was also crazy, infact wacko! It was so well put together showing how each patient was mentally unwell/unstable but they were all affected differently.

There is no question as to why I love The Hotel… it has Lady Gaga as the main character! If you love vampires then this season is definitely for you. The glamour, the mystery and the deaths inside the hotel that trap their souls forever is so interesting.

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5. Favourite thing about Halloween?

E.V.E.R.Y.T.H.I.N.G! What isn’t to love about Halloween?! It gives me the excuse to snack on absolute crap for one ha ha! In all seriousness though, I love the creativity that flows within people – the makeup, home made or bought costumes, families coming together and taking the little ones trick or treating and all the fun Halloween games such as dookin’ for apples!

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6. What Halloween costume will you or your children be wearing this year?

This year I’m breaking my Zombie Nurse costume that I used to wear every year and I’m going for an eco-friendly costume that I bought from Ebay which is a Skeleton bodysuit and skeleton tights. Halloween costumes are so great and the less plastic we use for costumes each year, the better. I don’t have any children as of yet however the dogs have a variety of costumes to choose from such as a shark, jester, pikachu and much more!

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7. Has anything spooky ever happened to you?

Yes, quite a list but I won’t bore you with the entire list! I always have to remember that not everyone shares the same views or beliefs however, the scariest thing that happened to me was when I was 17 when I was newly diagnosed with my illness- Crohns Disease. At this time I stayed with my mum and was very unwell. One night I woke up to people standing around my bed and it was so terrifying, I screamed and cried. I eventually cried myself back to sleep and when I woke up there was noone there.. I later discovered the people I saw were passed over. Since then, I have seen a lot of non living people and have had dreams where my Granda and another person I knew called Gav who visit me.

It is quite terrifying to  be able to see the unliving and I try to ignore it as much as possible as I’m not quite ready to live my life being comfortable with it and having them around me more.

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8. Who is your favourite fictional serial killer?

Damn, just fictional! It definitely has to be A from Pretty Little Liars! As it was originally a book. It first starts off as Mona then as the series goes on, it turns into CC being A!

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9. What’s on your Halloween playlist?

I actually don’t have a playlist dedicated to halloween as my music taste is full of variety! Mostly Ozzy Osbourne, Metallica, Disturbed, Slipknot, Nirvana etc. But if I had to pick some then they would definitely be The Cranberries – Zombie, Blue Oyster Cult – Don’t Fear The Reaper and Bad Wolves – Killing Me Softly.

Now I have to tag other bloggers to continue the Halloween tag 2019! I have chosen;

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crohnsfighting 

Colitis and Me

Have a lovely Halloween and make sure to give these bloggers a follow!

 

 

 

Life With A Stoma, Personal Blogs

5 Years Today I Was No Longer Homeless!

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Today, five years ago I finally got the keys to my permanent home after being in homeless accommodation for 7 months. Aberdeenshire Council were so helpful in finding me a permanent home and I am still to this day very grateful. The rent was crazy expensive at almost £90 per week in homeless accommodation, so by the time it was time to move I was in quite a bit of debt.

I moved in on the 16 of October 2014 and had no idea just what was about to happen just a few months later. By January 2015 I fell gravely ill and was hospitalised with the biggest Crohn’s flare I had ever had from contracting a bacteria called Campylobacter. From January until June 2015 I spent those months in and out of hospital and at the beginning of June, I had surgery to have a stoma placed and my entire large bowel removed due to sepsis. It was stressful as I wasn’t in my new home for very long at periods of time and when I was able to go home, I spent some weekends at my mums just to avoid having to do anything tiring like changing my bed or lifting a kettle. Again this repeated in September where my rectal stump had become septic and I needed that removed too. The operation was the easiest one I have had and I got home just three days later.. until the wound got infected.

For a few years I struggled with the infections, losing blood, vomiting, pain and fatigue. My home changed over the years from colour, furniture, flooring etc but I really struggled to have a feel of the house being ‘home’. I struggled financially and was never happy with what I had because it was all I could afford at the time and I wasn’t able to upcycle anything due to being so poorly. However now sitting here in my comfy, cosy bed on a lovely Autumn night I am really beginning to love what I have achieved. Most things have been left to break before replacing them such as kitchen essentials. Slowly I have been replacing the old with the new and making it fresh and bright. All I have to replace now is the dressing table! As it is fast approaching to winter the garden will have to be redone nearer summer time.

I have paid all my debts off that I had from back then but of course we know that life is not cheap!

I have also learnt that you really don’t have to spend a lot of money to enjoy things in life. A wedding doesn’t need to be so expensive that you spend the rest of your life paying it off or for a honeymoon that will really break the bank. Special days, memories and moments can be priceless and cost not one penny. When you are chronically ill, the littlest things can mean the most and we appreciate life as it is.

Being in a happy home that feels like home is something not everyone is so lucky to have and I think that makes us appreciate it even more.

Chronic Illness Blogs, Mental Health Blogs

How To Pass The Time On Bad Days

It may seem a strange to blog about how to pass time when you are having a bad day, but in reality time really does go slow when you are having a bad day, for example with pain or mental health. Many of us are guilty of trying to pass the time by scrolling through social media and find that it can sometimes make you feel worse or if it’s really late and no one is online, it can make you feel quite lonely.

So how can we pass the time during these difficult times?

  • Apps such as Pinterest, the Kindle App, YouTube, Sky Go and games that you like or may like to try.
  • Gaming on your laptop, PC or gaming consoles (for cheaper prices on games visit cdkeys.com)
  • Colouring in or diamond painting (you can get these cheap on eBay)
  • Picking a new hobby such as photography or walking if able.
  • Doing D.I.Y projects that are within your limits such as revamping an old mirror or old furniture.
  • Visiting the beach if it isn’t a cold day! The sea air smell and sounds are so relaxing that you don’t need to walk around the beach to enjoy it, just sitting with a flask of tea or coffee watching the sea is lovely.
  • Doing crafts, many people make beautiful things such as hats, scarves, sculptures and scrabble pictures.

For more ideas on what you can learn to do, visit google or Pinterest where there are so many ideas to choose from!

Please also remember that should you need to rest and sleep a few or many hours a day, do not feel guilty! I spend a lot of hours per day sleeping or napping and I always remind myself that listening to your own body is so important. On the good days, make the best of them! After a day of sleeping, I try to get my housework done and if the weather is nice then I like to go for a little walk with my pooches. Each day is very different, if not every hour so do what you can when able and try not to be hard on yourself.💕

Chronic Illness Blogs, Mental Health Blogs

Looking At The Positives

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Hello all, it’s been a while hasn’t it! I hope you are all doing well and my apologies for being so quiet this last little while.

So what’s new? Not much is new really! I had my implant removed finally which is slowly improving my acne. My mental health really hasn’t been good at all as it’s been a very stressful month or so and I have taken quite a bit of time out for myself to focus on family and friends. I have to admit that I’m not quite 100% and need to revisit my GP for a referral to get more mental health help but I have fantastic support from Jaimie, his parents and my parents. Having the dogs around has been my cushion when I fall, when the world feels like all hope is gone- there they are with a lovely soft cuddle and lots of kisses. As for moving house, I have decided that it just isn’t the right time due to the stress moving causes so I’m happy to stay where we are. It gave me the push I needed, though, to declutter my wardrobes etc! Biggie had his operation to remove his manhood and has recovered well and is now a little water baby and it is so, so cute!

Now, it’s about trying to get more into N.O stands for ‘Next Opportunity’ and focusing on the positives. A break from things like social media (and if you are a blogger, then blogging too) does you the world of good. I had a few issues with others trying to shed me in a public negative way and after so long I told myself that enough was enough and I deserved better and to only surround myself with good people who care about me and my wellbeing and what a lovely bunch they are! Even people that I don’t know who follow my blog and social media’s have been incredibly supportive and I thank you all so much. At the moment I will be doing some blogging here and there and remain to write articles for the Stoma Tips Magazine and possibly work on some blog contributions in the next few weeks.

Health wise i.e my Crohn’s Disease etc hasn’t been ideal but I’m coping. The Chronic Migraines has been the worst alongside Chronic Sinusitis and Arthritis but I have listened to my body and rested when I can, mostly watching Harry Potter! I also binge watched the new season 3 of 13 Reasons Why and Euphoria which were brilliant. Things can only get better and I will do my best to make sure of it! I also need to start watching That Crohns Chick more, if you aren’t subscribed to her Youtube Channel you can do so by clicking here to check it out!

A big thank you for reading and supporting me.

-Alannah

 

 

Awareness, Life With A Stoma

Purple Wings Ostomy Calendar

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Earlier this year, back in March, I took part in a photoshoot with The Purple Wings Charity and some other lovely women for the Ladies Ostomy Calendar for 2020! This photo is of all of together after our individual photos with the lovely women from The Purple Wings Charity, Lauren and Paige.

I flew down from Scotland on the friday and stayed until the sunday and flew back home on the Sunday too. Louise A.K.A Crohnsfighting was a super ostomy Mom and picked me up from the Airport! The weather stayed good too.

It was such a lovely day! All of us ladies got to meet and have a chat and had our makeup done by the lovely Jasmine Stacey (you may remember her from her ostomy underwear line The Jasmine Stacey Collection), beautifully made buffet food which I definitely had too much of! and then we had our photoshoots done by Lisa the photographer who was so relaxed and kept everyone super calm as a lot of us were quite nervous!

Here are a few of my favourites from the photoshoot;

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If you would like to do it for next year or any of the years to come, go for it! It has given us ladies a much needed confidence boost and it’s an opportunity of a life time, full of memories I will never forget!