Our Life With Crohns is an Instagram support page set up by Roza after being diagnosed with Inflammatory Bowel Disease, 4 years ago.
At the age of 17 Roza finally got the diagnosis of Inflammatory Bowel Disease and wanted to make a (safe haven so to speak) page on Instagram where people could ask questions and recieve advice from the world wide IBD Community. Some questions related to IBD can be embarassing for individuals and some even think these can be silly questions, however that is not the case.
The best part about the page and questions is that all sufferers are kept annonymous so nobody will know who it is that posts the question. Roza tells me that “the page first started with posting meaningful quotes with what it was like to suffer from IBD and after some time people began to ask more questions and it then developed fully into an asking questions support page.”
The time and support that Roza has put into this page has been completely from her own time, no money is associated. However Roza has had issues with spam messages and never posts them. Roza also has a personal account, here. It is a fantastic page and it’s a great opportunity to be able to share your experience and advice with others who seek advice and answers to questions you may know. If you would like to post annonymously please click here.
You do great Roza, keep up the good work! 💜
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