What difficulties do I face, being a disabled, chronically ill, mentally ill, and ostomy mom?
🌺 emergency bag changes before 7pm; finding a good time where my baby is occupied! He goes to bed around 6-7pm, so usually, I try to wait it out until then, if possible 💩
🌺 when I’m vomiting; I must have my partner stay home to help 🤢
🌺 medications are limited; majority of medications have horrid side affects, meaning they cause drowsiness or vomiting. I have to avoid these if my partner is working, no matter how badly I may need them 💊
🌺 low self esteem/mom guilt; taking a break because I’m so fatigued and leaving the housework for a day or when my partner has him all day due me being ill, leaves me with a great deal or mom guilt. “I can do better” 💔
🌺 PTSD being triggered; I loose sleep, have panic attacks at night, sometimes I vomit, I get overly anxious and focus on if the doors have been locked to the point I cant sleep, sweat and feel poorly🥵
🌺 social media negativity; people giving their opinions on disabled/chronically ill mom’s that “shouldn’t have children” and the back lash of raising awareness
🌺 hospital appointments; having to work them around my baby and, for example, having to travel hours for an appointment that can also take hours. This means jaimie and odin have to wait around for me and Odin gets his routine interrupted 😫
🌺 judgement on not working; “why can’t you work?” Or “surely you could get family to look after your baby so you can work” I do plan on going back into work but, online only. I recently took part in Style Fixers, who helped me with dressing for interviews and going back to work over at BBC iPlayer 😁
🌺 mobility issues; I’m not always able to go out and walk around most days due to pain. I so however, sit in the garden with odin at any given opportunity!
🌺 surgery/hospital admissions; this can be emotionally so tough. Being away from your baby is horrible! You feel so lost BUT it gives me motivation to recover and get home as soon as I can. It’s also motivation to keep going!
🌺 isolation; friends stop inviting you to things, not being able to join mom groups because they don’t understand my conditions
These are just a few, many difficulties, other disabled and, chronically ill mom’s, face too. Our culture needs to be more accepting of our struggles, and, to make places more accessible! It’s 2022 and times are changing, the nature of our conditions are being spoken of much more, making advocacy a huge part of society. Its so important to be a voice and all disabled/chronically ill mom’s to have a voice, in hopes of helping you understand which, in turn, helps you, help us!
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